Acromegaly Answers

Problem-Solving in Dealing with Acromegaly

By Valerie Golden, PhD

 

Taking an active role in solving problems is essential to dealing with acromegaly. If you have acromegaly, problem-solving means taking charge, anticipating potential challenges, and working around them.

Anticipate a problem and solve it in advance. If you can identify a potentially embarrassing social situation or remark, you can plan what to say or how to handle it in beforehand. By doing this, you can regain a sense of confidence, competence, and control. You can overcome the worry that, “I can’t handle it if ____ happens.” By developing solutions in advance, you can face down tough situations with increased comfort.

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Note that articles on this blog are written by a contracted writer/editor and use the thoughts of the posed author.

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Moving Toward Normalcy with Acromegaly

By Valerie Golden, PhD

 

Let’s talk about regaining a sense of normalcy after getting a diagnosis of acromegaly. Before we do, however, we should talk about emotional issues you might face. Try to understand these emotional issues as your best efforts to cope with the fears and anxieties of diagnosis, at least for right now.

The biggest emotional hurdles you’ll face are anger, depression, and irritability. Just getting a diagnosis is an anxiety-provoking event. It comes with fears about pain, finances, job performance, body changes, and relationship issues, in addition to fear of potential neurosurgery. People often respond to a diagnosis with social isolation and withdrawal, loss of libido, and lowered self-esteem. They develop regressive behaviors (being needy and childlike) and displacement (taking out frustration on others, typically loved ones who will absorb it safely).

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Medical Treatment for Acromegaly Has Come a Long Way

By Joseph Pinzone, MD

Assistant Professor of Medicine, Division of Endocrinology, OSU Comprehensive Cancer Center, James Cancer Hospital and Solove Research Institute

Hi, I’m Dr. Joe Pinzone, and I’m an endocrinologist with experience in treating patients with acromegaly. I’m here to talk to you about medical treatment for acromegaly.

First, let’s talk about goals. The main goal of acromegaly treatment is to lower your levels of growth hormone or GH, and another hormone, insulin-like growth factor-1, also known as IGF-1.

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Are You Alone? No!

By: Wayne Brown, an Acromegalic Patient.

So you have been diagnosed with Acromegaly.  If you are anything like I was, a small amount of congratulations is deserved.  I know that I was complaining for almost ten years about how lousy I felt, and finally being diagnosed offered a certain modicum of relief.  However, if you were more like me your next question was, what the hell is that?!

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Tanya’s Story: Acromegaly in the National Spotlight

On June 23, a personal story about Tanya Angus, a 30-year-old woman with acromegaly, was viewed by millions of viewers who tuned into the Today Show.

The Today Show airing, found here, was featured on MSNBC.com, in addition to other news and blog sites. Many in the acromegaly community have posted comments, noting how Tanya’s story has helped raise awareness about the disease.

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Note that articles on this blog are written by a contracted writer/editor and use the thoughts of the posed author.

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